Following the ever changing life of Maliyah and her family.

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Omaha
Omaha

Join us as we navigate out of state care at the University of Nebraska Medical Center. We are in search of solutions to help Maliyah’s symptoms of MMIHS.

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Little Moments
Little Moments
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Forgotten Post from April 4
Forgotten Post from April 4

I wrote this blog back in April - I thought I had posted it but I hadn’t sorry!

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Meeka
Meeka
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Moments in Time
Moments in Time

Its not every day that we ponder the “normal” or actually take a full account of an uneventful weekend. But as anyone that follows our blog or even stays loosely updated with our journey knows, normal is somewhat spectacular.

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slow and steady…
slow and steady…
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1 step forward, 2 steps back
1 step forward, 2 steps back
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at last…
at last…
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and we are out of here!
and we are out of here!
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Day 40
Day 40
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Latest Videos

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Catching Butterflies
Catching Butterflies

Almost every day that is sunny we are outside catching butterflies. Maliyah has gotten pretty good at catching and releasing them.

A Day up in Kokee
A Day up in Kokee

During this holiday season Adam and I miss the mountains of Colorado, so this trip up to the mountains helped us get up to some cooler weather and some mountain views.

Maliyah’s first time on a horse!
Maliyah’s first time on a horse!

This past week we were invited by my good friend/sister to ride horses! It was Maliyah’s first time on a horse and she loved it! Thank you Aunty Keani for an amazing time!

Broviac Surgery - Oct 6, 2020
Broviac Surgery - Oct 6, 2020

This video is about Maliyah's Broviac surgery on October 6, 2020. We flew over from Kauai to Oahu the day before and flew back the same day of surgery. Maliyah did amazingly well and seemed to bounce back rather quickly.

Hospitalization #7 Part 2
Hospitalization #7 Part 2
Hospitalization #7 Part 1
Hospitalization #7 Part 1
Our home now
Our home now

Touring our 400 sqft home that we are staying in while our home in Eleele is being remodeled. It's in an amazing location and Adam has done an amazing job at gutting and remodeling this place in exchange for rent. As nice at it is we're busting at the seams with 3 humans and a dog, and we can't wait to move into our new place!

Visiting our “New” House
Visiting our “New” House
A day in the life of Maliyah
A day in the life of Maliyah

A day in the life of Maliyah who was born with a very rare disease called MMIHS. This video shows the day in and out of a life with TPN.

Tball
Tball

Our Story

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Labor and Delivery
Labor and Delivery

After almost two weeks in the hospital I was induced and 12 hours later Maliyah Eunmi Caswell was born… Little did we know the roller coaster ride were about to embark on.

30 Days in the NICU
30 Days in the NICU

Adam called and told me that the genetic test was positive. Maliyah had MMIHS. It was like the world stopped moving for a moment and things just felt fuzzy.